Healthy Heart!

We just got back from the cardiologist and I want to cry happy tears! As soon as they put the wand on Skyler’s chest for the sonogram, the cardiologist nearly jumped out of her seat in excitement of how good her heart looked! She ran calculations twice just to make sure it was as good as she thought it looked, and it was! She pronounced Skyler’s heart as “virtually normal”. I think she nearly hugged us. It was all I could do to hold back the floodgates. One of the meds is being cut in half, the others will stay the same as she gains weight which will basically mean we’ll wean her off the meds naturally that way. We don’t have to go back for another two months!

Now Ronnie and I can happily celebrate our two-year wedding anniversary this weekend! We are going for one hour massages tomorrow, then get dressed up for a nice dinner at the Bristol seafood restaurant downtown, and then a night away at the Hyatt Crown Center! I can’t wait!

Doctor sees improvement!

Ronnie took Skyler to her cardiology appointment this morning and the doctor said she is finally seeing some improvement in her heart function! Apparently Skyler was pretty well-behaved, too, because the doctor was able to experience some of her normal happy demeanor. She’s now a whopping 13 pounds and 2 ounces (hey, that’s big for Skyler!) and the doctor said she won’t increase her meds even with her weight gain because her dosage is already high. With the shown improvement, she can keep her meds the same and with further improvement, maybe even bring the dosages down!

I am so relieved! Thank you everyone for all your prayers. They are working!!!

Cardiology Follow-up

Skyler had her first follow-up appointment this afternoon. It went good overall. She’s gained 10 oz or so since we left the hospital (two weeks ago), so that’s great that she’s gaining weight again, even while being on Lasix which sucks the fluid right out of her. Dr. Schroeder did a sonogram and thought things looked a little improved and maybe her heart was smaller, but she didn’t have the last sonogram from Children’s Mercy to compare side by side. She couldn’t get a good look at her aorta b/c Skyler was crying to much, so she’ll try again in a couple weeks. Might end up having to sedate her to get it, which would mean a little time in the ICU so they could monitor her closely during it, but it would just be a few hours at the most.

The best part was, as soon as the cardiologist saw her she was amazed with how good she looked compared to when she first saw her a month ago and diagnosed her problem. She couldn’t stop saying how much better she looked and acted than that time. That was the most reassuring thing to me. We’ll be going back every 2 – 3 weeks for awhile, and she has to stay on her meds for awhile. No daycare for a few more weeks. She is still technically in recovery even though she’s acting pretty normal, so the doc doesn’t want her catching any respiratory viruses if at all possible!